Medicine

Eradicating deafness?

Genetics, pathology, and diversity in twentieth-century America

by Marion Andrea Schmidt

Description

Is deafness a disability to be prevented or the uniting trait of a cultural community to be preserved? Combining the history of eugenics and genetics with deaf and disability history, this book traces how American heredity researchers moved from trying to eradicate deafness to embracing it as a valuable cultural diversity. It looks at how deafness came to be seen as a hereditary phenomenon at all, how eugenics became part of progressive reform at schools for the deaf, and how, from the 1950s on, more sociocultural approaches to disability and minority led to new cooperative projects between professionals and local signing deaf communities. Analysing the transformative effects of exchange between researchers and objects of research, this book offers new insight to changing ideas about medical ethics, reproductive rights, the meaning of scientific progress and cultural diversity.

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Reviews

Is deafness a disability to be prevented or the uniting trait of a cultural community to be preserved? Combining the history of eugenics and genetics with deaf and disability history, this book traces how American heredity researchers moved from trying to eradicate deafness to embracing it as a valuable cultural diversity. It looks at how deafness first came to be seen as a hereditary phenomenon in the first place, how eugenics became part of progressive reform at schools for the deaf, and what this meant for early genetic counselling. Not least, this is a story of how deaf people's perspectives were pushed out of science, and how they gradually reemerged from the 1950s in new cooperative projects between professionals and local signing deaf communities. It thus sheds light on the early history of culturally sensitive health care services for minorities in the United States, and on the role of the psycho-sciences in developing a sociocultural minority model of deafness. For scholars and students in deaf and disability studies and history, as well as to health care professionals and activists, Eradicating deafness? offers new insight into changing ideas about medical ethics, reproductive rights, and the meaning of scientific progress. Finally, it shows how genetics came to be part of recent arguments about deafness as a form of biocultural diversity.

Author Biography

Marion Andrea Schmidt is a Research Associate at the Department of Medical Ethics and History of Medicine at the University Medical Center Göttingen

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Manchester University Press

Manchester University Press

Manchester University Press is a leading UK publisher known for excellent research in the humanities and social sciences.

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Bibliographic Information

  • Publisher Manchester University Press
  • Publication Date October 2024
  • Orginal LanguageEnglish
  • ISBN/Identifier 9781526182395 / 1526182394
  • Publication Country or regionUnited Kingdom
  • FormatPrint PDF
  • Pages216
  • ReadershipGeneral/trade; College/higher education; Professional and scholarly
  • Publish StatusPublished
  • Dimensions216 X 138 mm
  • Biblio NotesDerived from Proprietary 4732
  • SeriesDisability History
  • Reference Code17049

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